Writing About Rare Diseases With Sensitivity and Accuracy

Please join us on the evening of October 13th (time TBD) for a discussion on how to write about rare disease with sensitivity and accuracy. Over 7,000 rare diseases affect more than 30 million people in the United States. It can be challenging to research and write about these conditions while remaining sensitive to patients’ and families’ needs, representing the science accurately, and setting realistic expectations for the future of medical care. Our featured panelists include:

If rare disease touches your life in some way, whether you’re a writer, patient, family member, advocate, or healthcare provider, we welcome you to join our discussion, as we would love to hear your perspective!